Many primary care providers are not familiar with VSS, and patients often need to visit multiple specialists seeking an answers o their problem. On average, it can take more than six years to receive an accurate diagnosis.
Choosing a speclialized with a topic clinic, offering a multidisciplinary care is the best approach to a diagnosis. Multidisciplinary centers (e.g. neuropsychiatric clinics) bring together teams of specialists who can work together to evaluate symptoms and facilitated a diagnostic process, excluding confounding psychiatric or neurological conditions.
Also, a team-based approach is helpful after a diagnosis, when managing symptomps.
Ruling Out Other Conditions - Differential Diagnosis of Visual Snow Syndrome (VSS)
When diagnosing Visual Snow Syndrome (VSS), a number of other medical conditions which may produce similar visual symptoms should be excluded.
Ophthalmic Causes
Various retinal and vitreoretinal disorders should be considered in the differential diagnosis of VSS.
Retinal diseases characterized by the perception of white dots:
- Acute Zonal Occult Outer Retinopathy (AZOOR)
- Multiple Evanescent White Dot Syndrome (MEWDS)
- posterior vitreous detachment
- retinal detachment
- vitreous floaters
- toxic retinopathies
- autoimmune retinopathies
The symptompa reported by patients with VSS may sometimes be confused with photopsias associated with inflammatory or infectious retinal disorders
Neurological Causes
Several neurological conditions may mimic the symptoms of VSS, including:
- migraine aura without headache
- occipital lobe seizures
- disorders involving cortical dysfunction
MIGRAINE
Symptoms such as: palinopsia, photophobia may be confused with the visual aura associated with migraine. This overlap is further complicated by the fact that VSS and migraine frequently coexist.
However, there are migraine-related visual symptoms are usually: episodic, precede or accompany headache
Psychogenic Causes
Psychogenic or substance-related causes should also be considered, including:
- psychotic disorders
- drug intoxication
- use of hallucinogenic substances
- Hallucinogen Persisting Perception Disorder (HPPD)
What afer the diagnosis?
The diagnosis itself often brings relief for patients living with an unknown, who were years being told "nothing is wrong,". Describing and understanding the condition validates patients experience and reduces the anxiety. Also, finding the community of VSS’ patients bring a big value, because they can share their experience knowing that they are not alone. This validation is a critical first step in management of the VSS.